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The truth is that my soul asks for very little. It mostly just needs to be heard and affirmed. It is sad that I have spent my life denying it this small benefit, that my automatic response is still to shame it into compliance. My Lenten fast from haste has inclined me to be gentle with my soul, and with the support of my wife, it seems to be making a real difference. I think I may make this my year’s resolution, “be gentle to your soul, listen to it and affirm it.”
This afternoon with many tasks pressing for attention, my soul said, “I need a little care.” So I left the tasks aside and followed my heart. After an hour with a soft puppy, a soft pillow, soft music, and gliding birds on our wide-screen, my spirit relaxed and set me free to be “productive” without choosing against my own needs. Forcing my soul to comply to the demands of duty tears at its very fabric. My soul is far more important than the leaky faucet, dirty living room, or ragged lawn.
OUT OF SEASON
My heart is even more important (dare I say it?) than satisfying others with birthday gifts, a lift to the airport, or help painting. If I wound my soul by caring for someone else, I not only harm myself, but prevent God from using alternative means to meet that need (or get in God’s way of teaching them an even greater truth). My giving to others must come from genuine resources that I have to offer. If it is squeezed from me by obligation, fear, shame, or the like, it will hurt both me and the one I am intending to help. Giving sacrificially is a part of genuine love, even to the point of giving my life for another. But God forbids me to sacrifice my soul.
This year I really need to give up my role as Savior of the world… or even of this particular situation or person. I need to learn to trust God with others’ needs and respect myself even if others blame me, reject me, or try to otherwise manipulate me to meet their expectations. That is a very tough thing to do without strong human backing, especially since my emotions are quick to agree with their evaluations. Thankfully, I always have Kimberly’s support (not on every occasion, but always in the set of her heart towards me… I think she is more supportive of me than I am of myself).
If I feel pressured by the expectations of others, I will try not to protect myself by minimizing their need (shaming or blaming them in return). Their need is legitimate and significant whether or not I can meet it. Caring about their need does not mean I must care for their need. What a heavy yoke I have been dragging around most of my life. In spite of how I imagined it, Jesus did not say, “Come unto me all you who are weary and heavy laden and I will give you more to do,” but he said to the weary, “I will give you rest.”
A blog post well worth reading:
My son Cade is a survivor.
Eleven years ago this week, Rebekah and I celebrated the birth of our first-born. Despite his Down syndrome diagnosis, we were overjoyed to welcome this new life into our family.
But not everyone welcomes children like Cade.
It’s no secret. People with Down syndrome have been targeted for extinction. In November, the New York Post heralded The End of Down Syndrome and profiled a new, safer test for pre-natal detection. Before this test was available, 92% of Down syndrome diagnoses (and many times false diagnoses) resulted in the mothers choosing to terminate their pregnancies. With these new tests, some experts foretell the end of Downs.
Why the rush to rid the world of people like Cade?
Certainly, it isn’t because his disability physically threatens anyone. Rather, Down syndrome children pose adifferent kind of threat to society—the in your face reminder that our aspirations for “perfection” may be flawed. People like Cade disrupt normal. Whether it’s his insistence that everyone he says “hello” to on the busy streets of Manhattan respond in-kind or his unfiltered ability to hug a lonely, wheelchair-bound, homeless man without hesitation: people like Cade bring new dimension to what normal ought to be.
I’ve been encouraged to see several pop-culture venues putting on display just how normal children like Cade—and the surviving 8%—really are.
I was surprised and delighted when I opened a Nordstrom catalog a few months back and saw a young boy with Downs syndrome posing as a model for children’s clothes. No mention or special attribution was made of it. But there he was, hanging with a few other boys, included as one of the gang. The way things ought to be.
Then again, last month, dozens of major news outlets picked up this story line when the same young model was included in the latest Target ad campaign. One father and advocate, Rick Smith, took the story viral when he posted 5 Things Target Said Without Saying Anything on his blog.
Only two weeks ago on the popular show Glee, a sixteen-year old girl with Down syndrome was portrayed beautifully. Her character showed life as a high school teenager, a member of the cheerleading squad dealing with the pressures of modern teen life. During the episode, you could hear her internal thoughts playing out as the writers took a bold step forward in portraying how it might feel to walk in her shoes.
But these public displays of inclusion are only part of how we counter the extinction of those with Down syndrome.
Why do the majority of expectant parents determine not to carry these pregnancies to full term?
Fear. [for the rest of this insightful article, connect to http://www.qideas.org/blog/to-cade-and-the-eight-percent.aspx
In the Shadows
I was pushing my grocery cart slowly down the aisle this afternoon when I felt my soul stabbed. This was one of those emotional spasms that spring without warning or excuse… sudden and sharp, making me feel physically ill or out of breath or as though I need to double over and grab my stomach from a knifing. When your psychic energy is chronically low, even small things can cause a short-out.
Just now as I write, I stop to recall my shopping and identify where I got jumped. At the entrance to Food Lion, I picked up the sales leaflet and wended my way through the produce and baking sections, making the cheapest selections and asking with each item, “Can we do without this?” My conscious mind was sorting through ounces and labels, but down below that, economic claustrophobia started squeezing my heart. Then I saw the ground beef. After 5 p.m. meat is marked down, sometimes as much as half off (depending on how old it is). At a 50 percent discount, hamburger was still $2 a pound.
That shock connected viscerally to my concern over whether I can make enough mowing lawns this spring and summer, whether it really was a good financial choice to buy a truck and mower (what do I know about lawn care anyway?!), whether Kimberly or I might have some major medical issue now that our health insurance has lapsed. These worries intermingle with fears of inadequacy, poor planning, stupidity, limited energy… a hundred whispered concerns babble in the backroom of my mind, and when I don’t recognize the source of my anxiety, it is difficult to calm the muttering. At least now I see what the clammer was about. Why the fear?
I know God can be trusted, but living involves my (faulty) input. It seems that however good and great God is, I can screw things up, make bad decisions, miss a turn. God has his hands full to keep me from driving into the guardrails, and I never know when God might see fit to let me “learn my lesson.” I tell myself that God is not like that. He is full of grace and patience and protective care. And I believe it… mostly… for now. I snuggle up next to my wife, scratch my dog’s ears, and find the shadow lifting.
Light In The Forest
I love this photo. The truths most crucial for my transformation are inevitably the truths that awaken me to my own personal terrors. I find I cannot grow in freedom, understanding, acceptance, relationship and other facets of genuine spirituality without facing my fears. To rescue me from my fears, grace leads me into them, or as John Newton sang, “‘Twas grace that taught my heart to fear, And grace my fears relieved.” Courage is gained slowly, one step at a time, and if I brave too much, more than my soul is ready to bear, I get knocked back a few paces. We must be gentle with ourselves, have compassion for our quaking spirits, take things slowly and with as much patience for ourselves as the God of all grace has towards us. Yet I must also find a way to pacify my tremulous soul, to discover the power of that truth which is embraced, trusted, fought for… truth about my wounded self and my infinite worth in God’s eyes.
When I step towards my fears, uncover them and open myself to feel them, to understand their deep hold on me, they increase and seem to gain strength. I try to face them with a spirit of self-compassion and faith in God’s love, but I can only take so much stress before my courage wavers, and I need to take a break from the battlefield, withdrawing for a time from people and situations that provoke my fears–fears of rejection, inadequacy, shame. I keep whispering the truth to myself and my trusted others until my faith is renewed enough to speak truth once more where it is unwelcome, resisted. It is my truth. You do not have to agree with me or consider this the right way to live your life (or even that it is the right way for me), but if you cannot trust me with my own life, then at least trust God with my life, in spite of my wavering steps, to draw me by grace along the way of growing integrity and harmony.
I just felt like stopping by and posting, but I don’t have much time. Today was better than yesterday, mostly because I was more attentive to my Lenten commitment to relax and give myself (and others) a break. Few things matter as much as I think they do, but having been ingrained with values I now intellectually deny, I very easily fall into old patterns without noticing. Unexplored emotions are much more likely to control me than strong conscious emotions, and my reasoning power is more likely to be manipulated by those hidden emotions than the emotions by my rational brain. I think architect Louis Sullivan was referring to outward more than inward observation, but I find his words true for both:
Attention is of the essence of our powers; it is that which draws other things toward us, it is that which, if we have lived with it, brings experiences of our lives ready to our hand. If things but make impression enough on you you will not forget them; and thus, as you go through life, your store of experiences becomes greater, richer, more and more availablel But to this end you must cultivate attention… the art of seeing, the art of listening. You needn’t trouble about memory, that will take care of itself; but you must learn to live in the true sense. To pay attention is to live, and to live is to pay attention….
One of my favorite poems:
Something is there that doesn’t love a wall,
That sends the frozen-ground-swell under it,
And spills the upper boulders in the sun;
And makes gaps even two can pass abreast.
The work of hunters is another thing:
I have come after them and made repair
Where they have left not one stone on a stone,
But they would have the rabbit out of hiding,
To please the yelping dogs. The gaps I mean,
No one has seen them made or heard them made,
But at spring mending-time we find them there.
I let my neighbour know beyond the hill;
And on a day we meet to walk the line
And set the wall between us once again.
We keep the wall between us as we go.
To each the boulders that have fallen to each.
And some are loaves and some so nearly balls
We have to use a spell to make them balance:
‘Stay where you are until our backs are turned!’
We wear our fingers rough with handling them.
Oh, just another kind of outdoor game,
One on a side. It comes to little more:
There where it is we do not need the wall:
He is all pine and I am apple orchard.
My apple trees will never get across
And eat the cones under his pines, I tell him.
He only says, ‘Good fences make good neighbours.’
Spring is the mischief in me, and I wonder
If I could put a notion in his head:
‘Why do they make good neighbors? Isn’t it
Where there are cows? But here there are no cows.
Before I built a wall I’d ask to know
What I was walling in or walling out,
And to whom I was like to give offense.
Something is there that doesn’t love a wall,
That wants it down.’ I could say ‘Elves’ to him,
But it’s not elves exactly, and I’d rather
He said it for himself. I see him there
Bringing a stone grasped firmly by the top
In each hand, like an old-savage armed.
He moves in darkness as it seems to me,
Not of woods only and the shade of trees.
He will not go behind his father’s saying,
And he likes having thought of it so well
He says again, ‘Good fences make good neighbours.’
– Robert Frost
Coming from a non-liturgical religious upbringing, I didn’t even know about lent until well into my adult years. As my whole life was lived in self sacrifice, I didn’t feel the need to dedicate one particular season to it, and once I started to heal from this self-flagellating outlook, I could not really practice sacrifice in any sort of healthy, spiritually beneficial way. This is the first year I chose to give lent a whirl, looking for the kind of focus that would be a meaningful blessing to my soul. For lent I decided to give up hurry and haste.
SLOW DOWN!
Driving was my first focus. I have stopped trying to make yellow lights, I leave earlier for work, and I look for things along the road I have missed in the past in my rush to get somewhere… to actually find pleasure in the trip itself. I have started to work on tasks at a more deliberate, even slow, pace. I have given myself the right to accomplish things on a calmer schedule, or even to leave them undone… to walk thoughtfully, absorbing the moment rather than focusing on the goal, destination, or end product. It requires a good deal of trust to depend less on myself, my efforts, and allow God to cover for me. Giving myself permission to rest is a vital spiritual exercise, one of the oldest life principles in the book, the intentional counterpart to creative work (as the Genesis story of beginnings recounts). My guess is that work is neither creative nor blessed (to ourselves as well as others) if it does not arise from a rested heart. Life isn’t waiting for me at the destination. Life is what happens while getting there.
This morning NPR interviewed a man with catalepsy, a cousin of narcolepsy. During REM sleep, our bodies release a certain chemical which tells all our muscles to relax (so we don’t literally act out our dreams). Unfortunately for a few folks, this chemical is released while they are awake, causing all their muscles to let go and thus paralyzing them. The release mechanism for this chemical is the person’s emotional response, and for the man on NPR (Walter?), it was especially triggered by his pleasurable emotions: excitement, happiness, love. 
You can imagine the impact this would make on relationships, especially family relationships. With his wife, think of not only sex, but kissing, holding hands, talking about the children… engaging in any emotional connection. Walter described collapsing at a grandchild’s birthday party and on phonecalls with his children. He spent the whole time at his daughter’s wedding propped up like a bag of potatoes against the wall. Not just happy events themselves, but simply looking at photos of happy events can paralyze him. There is no cure, but he takes a medication which slows the attacks, so it now comes on at a pace which he can recognize and respond to.
On the radio he spoke slowly and with no inflection in his voice, trying to speak of emotional things while blocking out the natural emotions. His speech became slower, with more pauses, he remarked that his eyelids were feeling heavy, and then the NPR interviewer told the audience that Walter had to go lie down because he was slipping into paralysis. The show host went on to describe how Walter could only function in life by avoiding happy occasions, turning himself more and more into an unemotional machine. For Walter, happiness is not a good thing nor is connecting with others emotionally. Such a heavy burden to bear through life.
My struggles in life are much smaller than his, but his experiences had an echo in my own. Those things that once gave me pleasure in the first half of my life–whether great or moderate, exciting or fulfilling–are beyond my reach now. I am always tired, so tired that doing something enjoyable feels like a burden rather than blessing. When I have emotional energy I get great pleasure in so many things–reading, writing, conversing, celebrating, creating. Those are mostly a dim memory now, and I only eke out small, brief pleasures. The more taxed I am, the less ability I have to experience the good.
For the last few weeks, my heart is starting to recover from its latest downspike. The telltale sign of my recovery is that imagining the joys of life feels good rather than painful. Merely the thought of blogging, for instance, has been lead to my heart, but imagining it these days feels more like a little red balloon… even if I still have little energy for actually doing it.
As we have been struggling financially for a while, I decided to save money this winter by installing a wood burning stove in our basement. I found a 55 gallon barrel, scavenged cinder blocks and ductwork from ditches and dumpsites, and with a $50 kit converted the barrel into a stove. I mortared the blocks together with clay from my yard and ran the ducts into our heating system. It is utilitarian, stuck in our basement with our washer/dryer, fusebox, unfinished ceiling and walls, and storage units, so I let it be an uncouth affair. It has served us well with free wood which is always available in these forested hills.
Nature's Ballet
As I build each fire and stoke it through the day, I have gradually spent more and more time just watching the flames. In my boyhood, the hearth was a spot of peace and calm. It was simply for our pleasure, so we lit it only when we had leisure time and a desire to sit in quietness. Childhood emotional memories are deep rooted, and I find that sitting by the fire now is healing, soothing. At first I sat leaning against a paving stone on the cement floor, but I eventually dragged a recliner into this storage room, and here I sit, listening to the steaming, popping, and crackling and watching the orange dancing glow, art in motion.
I’d like to ask my readers, what was peaceful and calming for you as a child? Would you share it with us?
About 10 years ago my oldest sister Mardi gave me a peace plant from her home. For the first couple of years it had several blooms, but with my haphazard watering and giving it sunlight, it soon stopped blossoming. When it drooped, I would water it… if I were around and noticed. I think it has more roots than dirt since I have never repotted it, not wanting it to get bigger. A less hardy plant would have just given up (as many of mine have!), but this one persevered. It put out nice green leaves, usually with brown shriveled tips from over-watering or under-watering (I still can’t tell the difference).
After 8 long years of barrenness!
This winter, Kimberly brought home an even more pathetic small peace plant. She had left it in the care of a colleague while she was out of town, and he had forgotten to water it. The leaves were mostly curled brown and crumbling to the touch. We cut off all the dead leaves which made it look less scorched, but more pathetic, and started to water it. And here in the middle of winter and struggle, we have been delighted with both plants deciding to bloom! The flower on my plant lasted a whole month before I burnt it with incorrect watering of some sort. Kimberly’s flower is just starting.
On good days, I think of it as a parable of our lives, a promise of what is to come, a hoped for sweetness and beauty from a long gestation of suffering and pain. I wish for you, friends, a glimpse of this beauty which is developing in you as well.
first glimmer of life and beauty
The truth is that my soul asks for very little. It mostly just needs to be heard and affirmed. It is sad that I have spent my life denying it this small benefit, that my automatic response is still to shame it into compliance. My Lenten fast from haste has inclined me to be gentle with my soul, and with the support of my wife, it seems to be making a real difference. I think I may make this my year’s resolution, “be gentle to your soul, listen to it and affirm it.”
Janathan Grace Reflections 